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Northwest Tribal Registry Data Assessment

Northwest Tribal Registry Data Assessment - One-page Summary

IDEA-NW/Tribal Registry Project, NPAIHB

June, 2012

The purpose of this evaluation was to assess the representativeness of the Northwest Tribal Registry, ninth version (NTR9). The NTR is used routinely for record linkages with various health-related surveillance systems (e.g., cancer registries and death certificates) to identify and correct AI/AN racial misclassification. We wished to assess how well this data source represented the AI/AN resident population of Idaho, Oregon, and Washington; and to identify sub-populations that may be targeted for inclusion in order to provide the most accurate health status data for all Northwest AI/ANs.

The NTR9 was created in June, 2011 from a combination of 3 source data sets:

Comparison data sources

Key findings

For more information, please see the full NTR9 Evaluation Report, http://www.npaihb.org/idea-nw/Exit Disclaimer Contact: IDEA-NW/Tribal Registry Project • NPAIHB • ideanw@npaihb.org

Tribe/Service Unit Population Comparisons

NTR9 = Ninth version, Northwest Tribal Registry

TRIBE/SERVICE UNIT Included in IHS registration export? (as of April, 2011) On RPMS?   UserPop FY2011 NTR9 - Tribe* Percent of User Pop represented   CHSDA population estimate (NCHS) NTR9 CHSDA population — county of residence** Percent of CHSDA pop represented
Burns Paiute Yes Yes   215 260 122.6%   388 441 113.7%
Chehalis Yes Yes   1,245 558 46.7%   10,452 7,852 75.1%
Coeur d'Alene No No   5,014 435 9.0%   12,945 6,543 50.5%
Colville Yes Yes   8,384 7,522 90.7%   13,034 14,774 113.3%
Coos, Lower Umpqua, Siuslaw Yes No   778 524 67.9%   12,363 7,604 61.5%
Coquille Yes No   1,163 518 48.5%   13,152 5,733 43.6%
Cow Creek Yes Yes   2,580 1,084 45.6%   19,826 11,3030 57.0%
Cowlitz Yes Yes   2,422 1,823 77.8%   52,271 35,799 68.5%
Grand Ronde Yes No   3,703 3,709 102.7%   27,762 17,441 62.8%
Hoh No No   30 160 484.8%   843 214 25.4%
Jamestown No No   58 167 36.4%   5,076 5,266 103.7%
Kalispel No No   69 130 28.8%   10,142 4,593 45.3%
Klamath No No   2,520 1,184 42.6%   3,504 3,895 111.2%
Kootenai Yes     183 145 80.1%   265 364 137.4%
Lower Elwha No Yes   856 394 47.8%   4,233 5,052 119.3%
Lummi No Yes   4,361 627 14.2%   6,525 5,796 88.8%
Makah Yes Yes   2,244 1,968 91.4%   4,233 5,052 119.3%
Muckleshoot Yes Yes   4,402 2,041 45.4%   37,056 29,669 80.1%
Nez Perce Yes Yes   3,971 2,635 70.7%   3,898 5,826 149.5%
Nisqually No Yes   1,715 170 12.7%   19,524 20,205 103.5%
Nooksack Yes Yes   1,086 1,098 109.4%   6,525 5,796 88.8%
NW Band of Shoshone No No   39 112 339.4%   0 0 0.0%
Port Gamble No No   1,531 102 6.4%   4,827 2,281 47.3%
Puyallup No No   7,773 2,524 32.3%   41,945 32,166 76.7%
Quileute Yes Yes   674 610 91.6%   5,076 5,266 103.7%
Quinault Yes Yes   2,511 2,671 106.8%   5,120 4,862 95.0%
Samish Yes Yes   593 594 104.0%   69,464 54,428 78.4%
Sauk-Suiattle Yes Yes   48 128 200.0%   14,935 11,156 74.7%
Shoalwater Bay Yes Yes   419 127 29.3%   690 805 116.7%
Shoshone Bannock Yes Yes   6,271 4,603 73.5%   6,692 9,412 140.6%
Siletz Yes Yes   5,207 3,926 75.9%   42,703 26,114 61.2%
Skokomish Yes Yes   853 726 94.0%   2,650 2,492 94.0%
Snoqualmie Yes Yes   249 307 100.0%   52,780 40,911 77.5%
Spokane Yes Yes   1,628 1,898 115.9%   4,521 6,260 138.5%
Squaxin Island Yes Yes   795 814 100.0%   2,650 2,492 94.0%
Stillaguamish Yes Yes   125 145 97.3%   12,178 8,551 70.2%
Suquamish No No   542 98 17.8%   4,827 2,281 47.3%
Swinomish Yes Yes   1,233 816 65.4%   2,757 2,605 94.5%
Tulalip Yes Yes   5,021 3,670 75.2%   12,178 8,551 70.2%
Umatilla Yes Yes   3,066 1,730 56.9%   3,185 2,758 86.6%
Upper Skagit Yes Yes   517 642 118.9%   2,757 2,605 94.5%
Warm Springs Yes Yes   5,669 4,731 84.1%   18,807 16,216 86.2%
Western Oregon Service Unit Yes Yes   2,790 - -   - - -
Yakama Yes Yes   12,629 6,565 52.4%   15,973 18,918 118.4%
NARA No Yes   - - -   - - -
SIHB No No   - - -   - - -
Spokane Urban Clinic No Yes   - - -   - - -
TOTAL       107,182 64,691 60.8%   N/A; regions overlap N/A; regions overlap N/A; regions overlap
* Alive residents of ID, OR, or WA; restricted to date of last update 1/1/2008 or later
** Alive residents of ID, OR, or WA

Internet Citation: Northwest Tribal Registry Data Assessment. Healthcare Cost and Utilization Project (HCUP). July 2016. Agency for Healthcare Research and Quality, Rockville, MD. www.hcup-us.ahrq.gov/datainnovations/raceethnicitytoolkit/or15.jsp.
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