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Race, Ethnicity, and Language Data Collection: Nuts and Bolts

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Northwestern University Feinberg School of Medicine

Race, Ethnicity, and Language Data Collection: Nuts and Bolts

Romana Hasnain-Wynia, PhD, Northwestern University, Feinberg School of Medicine

Northwestern University Feinberg School of Medicine logo

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GOAL:

Collect accurate and reliable race and ethnicity and language data to:

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Goals for Today

To prepare participants to train registration staff and inform leadership about the importance of effectively collecting high quality data on race, ethnicity, and language that meet state requirements and for use to improve quality within your hospitals.

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Training Objectives

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Tools to Facilitate Data Collection include:

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Why do hospitals collect race, ethnicity, and language data?

"Who, When, and How: The Current State of Race, Ethnicity, and Primary Language Data Collection in Hospitals". Romana Hasnain-Wynia, Debra Pierce, and Mary A. Pittman. The Commonwealth Fund. May 2004.

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How do hospitals use race/ethnicity data?

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Why every patient needs to be asked

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Why the data collection technique matters

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When and where to ask

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The importance of the introductory statement

Helps patients understand why you are collecting the information and how it will (and will not) be used

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Introduction

In order to guarantee that all patients receive the highest quality of care and to ensure the best services possible, we are asking all patients about their race, ethnicity, and language.

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Why use this introduction

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Most patients agree it is important to collect race/ethnicity data

"It is important for hospitals and clinics to collect information from patients about their race or ethnic background"

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Patients strongly support hospitals examining differences in quality

"It is important for hospitals and clinics to conduct studies to make sure that all patients get the same high-quality care regardless of their race or ethnic background"

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But patients have concerns about how the data are used

"How concerned would you be that this data could be used to discriminate against patients"

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Staff will feel more comfortable asking patients these questions if:

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You can help staff become more comfortable by:

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Some potential challenges from staff

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Patients will feel more comfortable if they know:

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Patients will feel more comfortable if:

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Tools to Facilitate Data Collection include:

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What Else?

YOUR TURN


Internet Citation: Race, Ethnicity, and Language Data Collection: Nuts and Bolts Healthcare Cost and Utilization Project (HCUP). June 2014. Agency for Healthcare Research and Quality, Rockville, MD. www.hcup-us.ahrq.gov/datainnovations/raceethnicitytoolkit/ca11.jsp.
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Last modified 6/12/14